About Me

ABOUT ME !!!!! I’m a older woman. I have 2 children, ONE GREAT BOYFRIEND and one cat named Mickey. We all live together in PA.. My daughter and son are very understanding when it comes to my RSD. They are 2 of the best things in my life.I was once married for about 6 years but it did not work out. I left my husband and found David who is my boyfriend and I think knows as much about RSD as a doctor does. He is very understanding when it comes to how I feel. I also owe my life to him. We have been together going on 11 years and we are still going strong! David and I were an online romance (so to speak). He moved here from CO after talking on the net and on the phone for 3 months. Everyone thought I was crazy! But we are still together. I used to work as a Day Care teacher for many years. Hmmmm lets see about ………. 12 years. No other job in this world could have made me happier.

RSD THE DESEASE I HAVE!! Reflex sympathetic dystrophy (RSD), also known as complex regional pain syndrome (CRPS), is a chronic, painful, and progressive neurological condition that affects skin, muscles, joints, and bones. The syndrome usually develops in an injured limb, such as a broken arm, or following surgery. However, many cases of RSD involve only a minor injury, such as a sprain. And in some cases, no precipitating event can be identified. While RSD is most common among women, it does not discriminate on the basis of age, race or gender. It can happen to anyone at anytime.
There are several progressive stages to RSD and it can spread to any and all parts of the body. Symptoms may include swelling and sweating, along with temperature and color changes in the affected extremity. Severe atrophy, disfiguring muscle contractions and osteoporosis may later occur.
Severe, burning pain is the most common symptom. Sufferers describe the pain as if “doused with gasoline and lit on fire.” Even simple sensations such as a gentle breeze or vibration can send one into spasms of unrelenting pain.

..Those with RSD often suffer devastating personal, financial and social hardships. The sufferer can expect a lifetime of pain and disability, abandonment by family and friends, financial ruin, social isolation and depression which very often leads to the ultimate pain killer—suicide All this makes life with RSD a supreme challenge. ..

3 Responses to About Me

  1. Luna Smith says:

    I have RSD too. I’m really 13. Seeing your poem made me cry a little. It really helps to know that someone else also knows the pain I’m going through. Thank you. Really. Thank you…

  2. Luna Smith says:

    I got a nerve block, and it doesn’t hurt anymore. But still, I know the pain you went through. I’m still being called a faker at my school.

  3. Kevin Scardifield says:

    Worldwide Awareness Campaign Please Help

    People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
    Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.
    it is vital that you watch it to the end
    If you are newly diagnosed I strongly suggest you do not watch it.
    If you live in the UK please sign http://epetitions.direct.gov.uk/petitions/31344
    E-mail the link to your MP asking why since being informed on 30/10/2010 David Cameron, Nick Clegg and The DOH have refused to do anything about the situation.
    You can also send it to some members of the House of Lords.
    No matter where you live in the world can you please sign here http://www.pledgebank.com/RSDCRPS

    If you live in another Country can you start your own petition and send the link to your own Politicians
    If you are willing to commit to spending 15mins a day for 4 weeks then 15mins a week to help spread this then please e-mail me on.
    RSDFighter@hotmail.co.uk or join me on facebook

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